We wish we could be there to honor Ellis and celebrate the HoPE that can be found amidst a devastating diagnosis. If you decide to go, please let us know!
Showing posts with label HPE. Show all posts
Showing posts with label HPE. Show all posts
Wednesday, September 28, 2011
Run/Walk for HoPE
We wish we could be there to honor Ellis and celebrate the HoPE that can be found amidst a devastating diagnosis. If you decide to go, please let us know!
Tuesday, May 31, 2011
May 31 - Update
Well, we've made it through another week. Tomorrow marks 8 weeks since we found out about the possibility of complications. 8 weeks ago today we were functioning under a very different, much more carefree, mindset and yet today, we still have so much we are thankful for. One being the overwhelming love and support of family and friends. We've learned to lean heavily on others when our own strength is weak. God has placed us in the midst of some wonderfully kind, supportive, and sensitive people.
One of the ways in which people have cared for us is through prayer. Many of you saying, "I don't know what else to say or do, but I wanted you to know I'm praying." Friends, prayer is the best thing you can do for us and we never tire of hearing that someone else has joined us in doing so. So many of you have shared our story with others, allowing countless numbers to be flooding heaven's gates with our requests. I know God already knew all about Ellis, even before we did, but I'm confident that the names Tim, Rebecca, and Ellis are familiar to him now. I've been told time and again that our emails are being forwarded on to people's friends, family, co-workers, neighbors, etc. So, in order to make it easier to share updates and specific prayer requests I've started a blog. I will post updates there and those of you who care to receive updates via e-mail will still be able to do so, as you can "subscribe" to the blog by typing your email address into the form. Feel free to pass on our blog's address to anyone who might be interested. You can find us at http://henryhouseofhope.blogspot.com/.
Today's appointment went relatively well. Ellis is definitely growing, although his head is still measuring quite small. The doctor is seeing some possible malformations in the area of the eyes and nose. All of this would contribute to his diagnosis of HPE. The development of his brain is our greatest area of concern for Ellis. As you pray, please keep his little brain and sweet face in mind. Some of the good news is that fluid levels went up again this week! We are well into the "normal" range and this contributes to less cord compression and a healthy heartbeat. The doctor spoke optimistically about carrying to term and the likelihood that Ellis would tolerate a typical delivery. This is an answer to prayer for us! Ellis's bowels continue to be dilated, but even at the point of build up we were able to see where the bowels are continuing to try and push the fluid through. We're praying that we would be able to see improvement in that area of development as well.
So, despite exhausting appointments that are nothing like what we envisioned going through 8 weeks ago, we are thankful for the good news we heard today. Perspectives can alter greatly in the midst of such circumstances. Although we are daily tested, there is so much that is changing us for the better these days. We are learning a great deal about having the courage to hope and the faith to believe in prayer. In the last week alone we've been up on our feet rejoicing in the miracle of a friend's healing of cancer, only to be back down on our knees pleading on behalf of another friend's diagnosis. Joy and sorrow are so closely intertwined.
Thanks again for praying with us and for loving our little boy. We are truly blessed.
With love, Tim and Rebecca
One of the ways in which people have cared for us is through prayer. Many of you saying, "I don't know what else to say or do, but I wanted you to know I'm praying." Friends, prayer is the best thing you can do for us and we never tire of hearing that someone else has joined us in doing so. So many of you have shared our story with others, allowing countless numbers to be flooding heaven's gates with our requests. I know God already knew all about Ellis, even before we did, but I'm confident that the names Tim, Rebecca, and Ellis are familiar to him now. I've been told time and again that our emails are being forwarded on to people's friends, family, co-workers, neighbors, etc. So, in order to make it easier to share updates and specific prayer requests I've started a blog. I will post updates there and those of you who care to receive updates via e-mail will still be able to do so, as you can "subscribe" to the blog by typing your email address into the form. Feel free to pass on our blog's address to anyone who might be interested. You can find us at http://henryhouseofhope.blogspot.com/.
Today's appointment went relatively well. Ellis is definitely growing, although his head is still measuring quite small. The doctor is seeing some possible malformations in the area of the eyes and nose. All of this would contribute to his diagnosis of HPE. The development of his brain is our greatest area of concern for Ellis. As you pray, please keep his little brain and sweet face in mind. Some of the good news is that fluid levels went up again this week! We are well into the "normal" range and this contributes to less cord compression and a healthy heartbeat. The doctor spoke optimistically about carrying to term and the likelihood that Ellis would tolerate a typical delivery. This is an answer to prayer for us! Ellis's bowels continue to be dilated, but even at the point of build up we were able to see where the bowels are continuing to try and push the fluid through. We're praying that we would be able to see improvement in that area of development as well.
So, despite exhausting appointments that are nothing like what we envisioned going through 8 weeks ago, we are thankful for the good news we heard today. Perspectives can alter greatly in the midst of such circumstances. Although we are daily tested, there is so much that is changing us for the better these days. We are learning a great deal about having the courage to hope and the faith to believe in prayer. In the last week alone we've been up on our feet rejoicing in the miracle of a friend's healing of cancer, only to be back down on our knees pleading on behalf of another friend's diagnosis. Joy and sorrow are so closely intertwined.
Thanks again for praying with us and for loving our little boy. We are truly blessed.
With love, Tim and Rebecca
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