Welcome to our House of Hope

Thanks for coming to check in on us. This is our story. Ellis was our first...the one who made us a mommy and a daddy. In April 2011 we went in for a routine ultrasound at 21 weeks, hoping to find out if Baby Henry was a boy or a girl. Instead, we discovered that there was something very wrong. Soon, our little boy was diagnosed with holoprosencephaly, HPE for short. We have HoPE that God is in the details, even when the days seem dark. He was there as we waited for Ellis to enter this world and we believe He was there when Ellis left us to enter a world we don't yet know. Our love for Ellis remains strong. He will always be our little guy. Thank you for remembering him with us.

Showing posts with label Hope. Show all posts
Showing posts with label Hope. Show all posts

Wednesday, May 23, 2012

Redemption


With great frequency, I find myself re-reading my words from this time last year. I’ve yet to do so and not burst into tears. It doesn’t take much for my heart and mind to rush back to that time, experiencing those emotions as if it’s for the first time. Sometimes, I’m still shocked this is my story. Is it really possible we lived through that? Did our firstborn really come and go so quickly? It seems to be common of the human condition that we struggle to embrace parts of who we are or what we’ve become. I’ve never felt that so strongly until I became Ellis’s mother. And yet, in all of this mess, I see Him doing something beautiful. I look at the short life my baby boy was blessed with and know that God did something amazing there. As I read the words I wrote then, His presence is palpable, even a year later. If I’m being truly honest, I have to admit I struggle to feel and know Him now like I did then. I cling to what I know to be true, but sometimes I wonder how I did it at the time, because it seems more difficult today.

Angie Smith wrote about it this
way. I resonate deeply with her words here. It hurts and it’s harder than I thought it could be, but I trust, I know He will redeem all things. The beauty in that promise is simply overwhelming. It restores hope and awakens joy to the inner reaches of my weary soul. 

He who was seated on the throne said, "I am making everything new!" Then he said, "Write this down, for these words are trustworthy and true."
Revelation 21:5

Saturday, April 28, 2012

Hello, again

I stopped writing. I don’t know why. Even my journal has been neglected these past few months. There’s no real answer, but I think I just needed to live life for a bit and process quietly. My mind wasn’t ready to articulate the thoughts, emotions, and experiences we were dealing with at the time…even in the privacy of my own journal. So, I took a break and that was good. But today, I sat down to read someone else’s writing and suddenly I missed my own words. I’d picked up the pen and began writing personally a few weeks ago, but it was still sparingly. But today, all of a sudden, I missed writing. So, there are no promises that this writing will continue, but, for now, my voice is ready to be a bit more audible again.

The quiet was good. It was needed and, I think, a part of this healing process we’re still going through. Our hearts have grieved, struggled, ached, hoped, and healed over this last year. I don’t think we’re done with any of those things, as we continue to experience each one.  A year later, it’s hard to envision who we were before we were ever told, “Something’s wrong with your baby.” I’m becoming more comfortable with my new self, but it has been a long year getting to know her…a very long year.

With love,
Rebecca

Thursday, December 8, 2011

a Savior born

Advent.  Expectant waiting.
Christmas. The birth of a long expected Messiah-- a gift of mercy and grace.
This year I approach Advent and Christmas with a different heart, one that feels a bit battle worn. Nothing feels quite the same anymore, even Christmas.  I love this time of year and I want to enjoy it like I have in years past. But, I don’t know if that’s possible. I think it will always feel different, even when this time of intense grieving is over. I view the world and most experiences through a different lens now. I know it won’t always be so hard, but as with many other things, this time of year is now more complicated.
This year I’m not just waiting for the Christ child to be born. I’m waiting for His redemptive work to bring healing, restoration, and peace. I’m waiting for His mighty hand to shift frustrating circumstances. I’m waiting for the day when the pain of this life will be behind us and the joy of eternity with Him will be in front of us. I’ve never been so thankful for that little baby born in a stable. The day He was born was the beginning of a wonderful story. It brought powerful meaning to my own story and to my baby boy’s story.
When we think about Christmas, our hearts become warm and we romanticize the events of Christ’s coming. Yet this year, I’m struck by the idea that His coming to Earth as a baby , the years that followed, the anticipation of giving up His life for the sake of ours, and His actual death on the cross were evidence of His surrender to the will of God for the sake of our redemption. We think about Christmas and we imagine the wonder of God becoming man, coming to Earth as a baby, the Savior born! And yes, it is a story filled with goodness and joy, but it is also a story of great sacrifice…for Jesus, His heavenly Father, and His earthly parents.  They each gave something that was not easy to give.
Jesus—He gave up His heavenly home, forsaking His equality with God
God the Father – He gave His only Son to live as a human and eventually die an unfair death
Joseph & Mary – they gave up a normal life, one that fit their plan, and a clean reputation
The first Christmas was most definitely filled with grace, wonder, and beauty, but I also believe it was messy and hard.  I’m thankful that God in his infinite goodness chose to send his Son for us. What love, what grace, what sacrifice. It’s the giving up of so much that makes it beautiful. I suppose that’s why we love Christmas so much…an immeasurable gift was given. Something we simply did not deserve and suddenly it was ours. This Christmas the pain of loss is real in my own heart, but I hope that is going to allow me to better understand the sacrifices so integral to this story.
I hope and pray that the wonder of this season fills your home with joy, peace, and love. It’s the prayer I’m praying for our home as well. Merry Christmas, friends.
With love,
Rebecca
Luke 1:46b-47
My soul glorifies the Lord and my spirit rejoices in God my Savior.

Thursday, October 27, 2011

Thoughts at 4 months

Here we are again, acknowledging the passing of another month. It’s been four now. Sometimes I allow myself to think about what it would be like to be celebrating four months of life, as opposed to only remembering that it was four months ago he was here. It’s a big difference. He’d have grown so much by now, I’m sure. Now that autumn is truly here, we’d make sure to bundle him up warm and cozy…probably acting as over-zealous first time parents who are sure the baby will freeze in this mid-fifties weather. Maybe we would’ve moved him from our room into his room. I’d probably be missing him at nights, wishing he were closer. Kind of like how I miss him now, perpetually wishing him to be somewhere nearby. And of course, I’d be worrying and researching about taking him on his first airplane ride as we’re heading to see family over Thanksgiving and then again at Christmas. Instead my life is very different, quite void of all of that.
I’ve found I can’t let my mind stay in that place where “what if’s” contrast so starkly with reality. It’s not good for my mind or my soul. But Tim and I both think about it from time to time and it makes me wonder what it would be like to experience all of that. For now I watch those life-altering transitions occur in other family’s homes and hope for the day when it will happen in mine. This is a House of Hope, after all. Our minds may get stuck in the wondering why this is our reality and not that, but that does not mean we are not without hope. Our tender hearts are learning to trust that our big, good God knows what He is doing. I can rest in that, even when my heart becomes anxious wondering what our future will look like.
There are still some who are brave enough or kind enough to ask us how we’re doing. I know not everyone is sure how to handle that. I think some are afraid they will open up a wound by asking, but the truth is the “wound” is still open and never far from our minds. We’re not being reminded of its existence when someone asks, but more being reminded that others remember Ellis too. Tears may still come when someone asks, “How are you,” but that doesn’t mean we don’t welcome the question.  And still, four months later, we don’t always know what to say. So, we often stumble over our words and come across as confused. I guess that’s because we are. Grief is quite confusing.
Let me explain.
We ache. My heart still physically hurts most of the time. Even in those moments when laughter fills the air and there's fun to be had, it's still there.  
We have hope. We pray for restored joy and believe that God will grant us that. It makes it possible to get up and do it all again each day.
We’re scared. What will the next year of our lives look like? We’re now very aware that you can plan out your life all you want, but no moment in the future is certain. It can be hard to face an unknown future without fear.
And yet, we’re thankful. God has been so incredibly good, even in this. There is honestly so much to be thankful for that I don’t know where to begin. So, you’ll just have to trust me that we are truly blessed people.  
The emotions are conflicting and it’s hard to convey all that we think, feel, and experience. As much as I can write and talk about all of this, I feel as though I can’t adequately describe the journey. We appreciate that we’re still able to tell our family’s story. For now, we continue to heal, grow, and change through all of this.
With love,
Rebecca

Monday, September 26, 2011

3 months

3 months. In many ways I’m shocked to find myself here. How did time move so quickly? My heart remains bound to the moments when I could feel Ellis kick, hear his heartbeat, or better yet, hold him in my arms. And somehow, our time with him seems so far away. For many others, his life may seem distant despite the fact that thoughts of him fasten to every other thought in my mind.  I guess it is just that way when the baby was yours and not somebody else’s.
And yet, with each new day I’m reminded that I’m one day closer to him. My baby is already living a jubilant life in Heaven with Jesus. When I stop and truly consider that, it’s astounding. He’s living and he’s in Heaven with Jesus. It’s exciting. It’s overwhelming. It’s hopeful. It’s good. In my best moments, this is where my mind dwells. I’m praying for more moments like these.
3 months later, there is still so much to process. I keep discovering new things about myself, my husband, our families, our friends, and our God. Every child is a gift and we are continuing to experience the blessing of Ellis, even if we didn’t bring him home with us.  Our hearts ache, because we were the ones left behind, but our hearts can simultaneously celebrate because new life is ours too. Since our God was and is willing to give “new life so generously” we can hold onto that hope. One day, one amazing and glorious day, we will live as Ellis lives: in Heaven with Jesus. I can’t wait.
Titus 3:3-8 (The Message)
"It wasn't so long ago that we ourselves were stupid and stubborn, dupes of sin, ordered every which way by our glands, going around with a chip on our shoulder, hated and hating back. But when God, our kind and loving Savior God, stepped in, he saved us from all that. It was all his doing; we had nothing to do with it. He gave us a good bath, and we came out of it new people, washed inside and out by the Holy Spirit. Our Savior Jesus poured out new life so generously. God's gift has restored our relationship with him and given us back our lives. And there's more life to come—an eternity of life! You can count on this.”

Wednesday, September 21, 2011

Living well

How do we live life well?
I used to ask this question, or a version of this question, before Ellis was even a hint in my imagination. I wondered about how to best live as a daughter of the King in my circumstances.  I wanted to serve Him well in my role as daughter, sister, friend, wife, and teacher. Nothing extraordinary, just regular life, but the question was how to do it well. Then, April 6th came, and for the first time I heard the words “incompatible with life.” I now had to figure out how to live life well when my context included waiting for my baby’s birth and impending death. I remember asking Him to help me live those days with beauty. They were hard days, but looking back I can see the good He gave us during that time. And now, since the moment that Ellis was born and so quickly delivered into the hands of Jesus, I again am asking, “How do I live well?”
Each time the answer has been the same and it will continue to be so. Look to Him. There’s no other way. He gives it meaning. The moment I make it about myself, it falls apart. As soon as I try to take the weight of it all upon myself, I begin to crumble. There’s comfort in knowing the answer remains the same, no matter the circumstance. It’s the constant answer to the constant question, even when life is anything but constant. It strengthens me as I face the future, looking ahead to continued days of unknown. Because what I know of Him is good and it will always be that way.

-Rebecca

Sunday, August 28, 2011

Infinity


Infinity.
     God covers all of that. His love. His goodness. His grace. His wisdom. All of it, infinite. He governs every moment. He holds all things together. He knit Ellis together perfectly because He is God and He is infinitely good. If I don’t believe that, I discredit the essence of who God is.

     Recently, some friends sent Tim and me a book, Trusting God: Even When Life Hurts by Jerry Bridges.  These friends know suffering. They are young, newly married, and life has been uncertain for them these last few months. A diagnosis of leukemia put them in the midst of an intense life storm. Through it all, we’ve watched them remain steadfast in their love and trust of our God. We’re learning from each other, encouraged by each other’s responses to our respective hurdles. In his infinite wisdom, grace, and love God is using others to teach us more about Himself. I’ve only just begun to read the book they sent, but it is already teaching me so much about who our God is and what that means in the midst of suffering.

God never pursues His glory at the expense of the good of His people, nor does He ever seek our good at the expense of His glory. He has designed His eternal purpose so that His glory and our good are inextricably bound together. (p.23-24)

     God in His infinite wisdom, infinite goodness, and infinite power was there when my baby’s brain didn’t form correctly beginning a chain reaction in his body that led to the irregular development of his face, his heart, his lungs, his kidneys, his spine, and even his feet. This God, whose ways are perfect, was the creator of Ellis. I still believe that and I still believe Him to be infinitely good.

     This infinite God cannot be contained, cannot be fully explained, or completely understood. To try to do so as a finite being is impossible. Every explanation or description falls short – that is the wonder of infinity.  The concept is bigger than we can comprehend or imagine, just like every aspect of our God. We cannot adequately describe Him if we cannot explain infinity. It’s humbling. It’s overwhelming. It’s good.

     I hope and pray you’re willing to partner with us in this pursuit to learn about and better know this infinite God. As we’ve already found, God has placed us in each other’s lives to teach, encourage, and grow together. Tim and I know we can’t grasp it all, but we want to discover as much as we can. Please join us, will you?

He does as He pleases…No one can hold back His hand and say to Him, “What have you done?”
-Daniel 4:35

With love,
   Rebecca


Thursday, August 11, 2011

The Truth

This coming Monday it will have been 7 weeks since we met our baby boy and held him in our arms. It feels like a long time ago, which is hard. We don’t like feeling so far away from June 27th, because it makes us feel far away from Ellis. The memories aren’t as fresh and already we begin to wonder, “did it happen this way or that way?” For us, the memories are a mix of joy and sorrow. We met Ellis! But, we also had to give him away. It’s not easy to do that so quickly.
Daily we’re asked, “How are you doing?”Honestly, it’s a tricky question to answer. Sometimes we don’t know what to say, because our emotions are all over the place. In the moments when I’m feeling at peace, I fool myself into thinking I’ll feel this way all day. Only to be kicked in the gut with sorrow or frustration. When I feel deep in the pit, I think I might never get out, yet joy and peace find their way in. So, to answer your question: We’re doing OK…I think. We have moments of joy, sorrow, peace, and frustration. Sometimes, all in a row (practically simultaneously), but from what I hear, that’s OK.
As Tim and I navigate this path, there are three thoughts I keep running into. You know when you feel like God’s really trying to teach you something because you keep hearing or reading the same idea over and over. Well, that’s me right now. Ever since April 6th, when we heard something was wrong and knew our lives would be changed because of it, I kept coming back to the simple truths about God I’d been taught my whole life. These three truths have been in my thoughts frequently these last few weeks.
1.       We are in the midst of God’s perfect plan for our lives. Strange isn’t it? Life doesn’t feel perfect right now, yet I know God is sovereign and I believe His ways are perfect. This is part of God’s plan for our lives. I don’t fully know why, but I know I can trust His will for my life.
 “This God – his way is perfect”  
-Psalm 18:30 (ESV)  
2.       God’s grace is sufficient. It’s bigger and greater than my biggest and greatest problem. Those low moments we find ourselves in are not without hope, because we KNOW God’s grace still covers us there. And it is He who carries us through those valleys. It is in God’s nature to give abundantly and He gives us a bottomless ocean of grace.
 “But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 
- 2 Corinthians 12:9 (ESV)
3.       He is near. These last four months have been hard and there have been moments, days, and weeks when we felt like we were just scraping by. But, I can say with confidence that I have never experienced the nearness of God like I have in these last four months.  There are days ahead that can bring me to my knees with fear and anxiety, but thoughts of those days are coupled with the knowledge that God is near. I have never been more certain of that in my life.
 “But as for me, the nearness of God is my good”
-Psalm 73:28 (NASB)
Today, nearly 7 weeks since Ellis was born and died, we are thankful to know that our God is good. He is so very good.  
“Give thanks to the LORD, for he is good. His love endures.” 
-Psalm 136:1 (NIV)

With love, Rebecca

Sunday, July 10, 2011

Two Weeks Later

Somehow two weeks have managed to pass by. It seems strange that two weeks ago, Ellis was still growing in my womb. At the start of that Sunday, I thought he was still safe. I knew he wasn’t healthy, but for the time being, he was safe. This morning when I woke up, it felt so much like that Sunday, except that the absence of Ellis was piercing my heart. I know he’s in Heaven…it brings me joy when my heart is feeling especially heavy, but sometimes Heaven seems so very far away. I want to picture him there, but sometimes I can’t. I often pray that God will give me glimpses of Heaven and what Ellis’s life might be like there.  
I’m reading a book by Randy Alcorn titled Heaven. It’s putting details into what my imagination had already begun to envision, but I think God is helping me to see what that place is like. Reading about it and pondering it helps it to feel not so far away. Our little Ellis taught us so much these last few months. He helped to set my sight on eternity. Although I knew this was the ultimate as a child of God, I don’t know that I truly lived it until now. God created us for more than our years here on this Earth. He created us with eternity in mind. Our little boy, the one whose breaths only lasted a few minutes, is the one who taught us that lesson. It’s humbling. And thankfully, God is gracefully using it to bring me joy. There is joy in knowing that Ellis is already living out his eternal calling.

With love, Rebecca

Wednesday, July 6, 2011

Letter to Ellis

I wasn't sure what would become of this blog after Ellis was born. We started it with the intention of keeping people informed, allowing them to pray more specifically for us. Some have asked me if I will continue to write now that Ellis is gone. While pregnant I spent alot of time reading the written words, through books and blogs, of those who had experienced the loss of a typical pregnancy, a "typical" child, or the life of their child. Those words have been encouraging and educational to me as we've walked this unusual path. Now that we are on this side of things I continue to journal, just as I did before. Writing has been a healing process for me and I hope to continue. So, for now, House of Hope will be a place to continue telling Ellis's story and share our thoughts as we process this experience and heal. I hope my words can be an encouragement to others. Thanks for being with us throughout this journey. We have loved sharing Ellis with each of you.

Below you will find a letter that was a compilation of two different journal entries I wrote in the days after we met Ellis. My sister, Sarah, was kind enough to read this for me at the memorial service this past Friday.

My sweet Ellis,
      Monday was your Birth Day. On that day, you blessed us in a whole new way. You came to us. You took a few breaths and your heart beat to the sound of life. You came feet first –leaving your footprint on our world. Daddy and I were scared about you coming, because we knew you’d probably be gone so soon. But, you came and we loved every moment we had with you. We long to hear your beating heart again, like we did as we waited for you to come in that hospital room. We hated to say “Good-bye,” but are so glad we got to say “Hello.”  There is joy in knowing you are home with Jesus.
       I love to picture you running, jumping, and laughing in heaven. My heart is full knowing the joy and freedom you have there. You’re worshipping the Lord fully there, perfectly fulfilling your purpose as a sweet child of God. Daddy and I can’t wait to see you there someday. It gives us hope and helps us push through the days.
      Ellis, your Birth Day was so special and there aren’t words to adequately describe it. I held you in my arms on that day. I don’t ever want to forget how that felt. I want to remember the excitement of hearing Daddy say, “He made it! He’s alive!” I want to remember seeing your full, dark head of hair, feeling your soft skin, smelling your fresh baby scent, and noticing your chin looked like Daddy’s. I miss having you here. I think about how I carried you in my womb and in my arms. I miss your kicks and tumbles. I miss hearing your heartbeat. I miss your long fingers wrapped around mine and your soft, rosy cheeks.  Your earthly body is what I picture in my mind, but I’m sure your heavenly body won’t compare.
      It’s difficult for my mind to stop thinking “pregnant,” where my every thought was, “What does Ellis need right now?” I thought about you all the time. From the way I made sure to lie on my side as I slept, to choosing the right food, to praying over you when I would wake in the night. How could I not think of you in every action when you were my constant companion? You needed me. And now, you don’t. Although Jesus met your needs better than I could while you were here, He is certainly providing for you now. He’s healed your body completely. I can’t stop imagining what that must be like. You are perfectly healthy and whole in ways that you weren’t while you were here. Our big God is so good, but, of course, you already know that…much better than I do.
       My sweet baby, there are hard days ahead for your mommy and daddy, but we are at peace knowing you are in a much better place. I’m praying Jesus will share my written words with you. I can’t wait to be with you again. You will have to show me the best parts of Heaven. For now, I’ll worship our big, good God with you from this place. I love knowing that is something we can still do together.
                I love you, Baby Bear.
                                -Mama